Numbers to Know

$850

For many families, the pursuit of any possible relief leads to a crushing financial burden where “off-label” medications and specialized experimental drugs—often not covered by insurance—can force out-of-pocket costs of approximately $850 per week. This staggering quarterly expense of roughly $11,000 highlights the desperate reality for patients navigating the gap between clinical trials and approved therapies.

250

After you are diagnosed with ALS you are told that it will cost you and your family, on average, $250,000 a year, out of pocket, for care. A majority of families go bankrupt or divorce due to this overwhelming financial burden.

90

Every 90 minutes someone is diagnosed with ALS, or passes away from it.

3

The average life expectancy of someone with ALS is 3 years, or 1,000 days.

NOTE: Many people choose to give from their assets – stocks, gifts from their IRA, cryptocurrency, and grants from their Donor-Advised Funds to see even larger tax savings

How You Can Help

Donate to The Peter Frates Family Foundation

Many PF3 teammates, supporters, friends, and family have Donor Advised Funds and they employ them to make philanthropic contributions. Donor Advised Funds present an easy way to support the Peter Frates Family Foundation. Donors can use such funds to make gifts to the Foundation and the families we serve. Donors can also name the Peter Frates Family Foundation as a beneficiary of a Donor Advised Fund. A Donor Advised Fund distribution is subject to IRS charitable contribution restrictions. Donor Advised Fund gifts cannot be used to pay for a ticket to a raffle or drawing, a fundraising event, or golf tournament.
Legal name: Peter Frates Family Foundation
PF3 Tax ID #: 83-1680823

For more information, please email Executive Director Mike Pitt or call 978-335-0792.

An easy option for donors over 70 1/2, maximize your charitable giving by making a gift out of an IRA. Donate up to $100,000 per year tax-free directly to the Peter Frates Family Foundation and avoid recognizing the distribution as income.

Gifts of appreciated securities can be the optimal way for many people to make a gift to the Peter Frates Family Foundation, particularly if the securities have grown in value. Typically, a sale of appreciated securities results in a tax on the amount that the securities have increased. This means that sellers are permitted to keep only a portion of the profit. By donating these appreciated securities to the Peter Frates Family Foundation, gift-givers avoid the capital gains tax while also earning a charitable deduction on the full value of the securities, even the portion that has increased in value.

The Peter Frates Family Foundation has partnered with the Essex County Community Foundation to manage its endowment and facilitate gifts of appreciated securities.

Transfer instructions are as follows:

Wire to:

Charles Schwab & Co. Inc.

DTC #0164

For credit to: Essex County Community Foundation, Inc.

Account No.: 1778-1714

Contribution to: ECCF/Peter Frates Family Foundation

Email finance@eccf.org the following information:

Name of stock to be transferred (call letters are helpful)
Number of shares to be transferred

Legal name: Peter Frates Family Foundation | PF3 Tax ID #: 83-1680823 | For more information, please email Executive Director Mike Pitt or call 617.383.3458