Numbers to Know

$850

For many families, the pursuit of any possible relief leads to a crushing financial burden where “off-label” medications and specialized experimental drugs—often not covered by insurance—can force out-of-pocket costs of approximately $850 per week. This staggering quarterly expense of roughly $11,000 highlights the desperate reality for patients navigating the gap between clinical trials and approved therapies.

$150

Selecting this will provide 1 Hour of Skilled Nursing Care for an ALS patient and Family. This is typical for progressed patients and is required for clinical needs like ventilator management, tracheostomy care, and complex medication administration.

$33

Selecting this will provide Homecare for an ALS patient and family for 1 Hour. This includes “hands-on” help with activities of daily living (ADLs) such as bathing, dressing, and mobility.

 

NOTE: Many people choose to give from their assets – stocks, gifts from their IRA, cryptocurrency, and grants from their Donor-Advised Funds to see even larger tax savings

How You Can Help

Donate to The Peter Frates Family Foundation

Legal name: Peter Frates Family Foundation | PF3 Tax ID #: 83-1680823 | For more information, please email Executive Director Mike Pitt or call 617.383.3458