News & Information on ALS

 

 

Below you will find the latest news on ALS research as well as personal stories of how some of the many people affected by this disease are waging their own fight to raise awareness in the fight for a cure.

One such story, Paying it forward with 1,000 days to live, recently appeared in the Boston Globe. It is an amazing story of how one person has faced down ALS and made an incredible impact in funding research related activities in search of a cure.

We will be continually updating this page and you might also want to check out the Prize4Life Facebook Page, which is continually updated with news pertaining to the fight to find a cure for ALS.

   

 

 
 

ALS Resources & Friends

 

 

 

Ron Griffith had a passion and a talent for developing unique, delicious sauces and mixes. After years of fulfilling requests for his creations from friends and family, Ron recognized the potential for marketing his products, which never came to fruition due to his diagnosis of ALS.

Upon his death in 2011 from ALS, his wife, Constance G. Griffith, established Gator Ron's Zesty Sauces & Mixes, a woman-owned, Benefit Corp (pending) company with the primary objectives of sharing these delicious sauces and mixes with food lovers everywhere, while helping to raise money for ALS research by donating a percentage of all sales to the Robert Packard Center for ALS Research at Johns Hopkins. http://www.gatorrons.com

 

 

 

 

The Frate Train is honored to be a supporter of The Wounded Warrior Project which provides programs and services to severely injured service members during the time between active duty and transition to civilian life. You can learn more about this very important cause at http://www.woundedwarriorproject.org.

 

 

 

 
 
 
 
 
 

Latest News on ALS Research

 

 
 
 

ALS Research Support

For those of you interested in donating to a registered 501(c)(3) and/or matching gifts in support of ALS research and patient care, Pete would like you to consider:

1. The ALS Clinic that he is a patient of at Massachusetts General Hospital.

http://www.massgeneral.org/als/support/

Donations here help to elicit the greatest potential from the MGH ALS Multidisciplinary Clinic’s superb team and fuel the research that will result in better treatments and ultimately a cure for ALS

2. Prize4Life - The Prize4Life mission is to accelerate the discovery of treatments and a cure for ALS by using powerful incentives to attract new people and drive innovation. This is an organization the Pete and his sister Jennifer have a very active role in.

http://www.prize4life.org

3. The Angel Fund - The Angel Fund is a non-profit organization dedicated to supporting ALS investigations at the Cecil B. Day Laboratory for Neuromuscular Research, internationally recognized for its ground-breaking work in the fight against this devastating illness.

www.theangelfund.org

4. The ALS Association - Established in 1985, The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure.

www.alsa.org

Please be sure to note on any donation made to ALS Worldwide that it is in support of Peter Frates.

 
   

 

 

 
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